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UnitedEndo |
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| UnitedEndoCouncil |
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| Title and Organization: |
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Director, United Endo Council |
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Gender and Age: |
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Female, 32
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| Location: |
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Laguna Niguel, California |
| Country of Residence: |
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 United States |
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English
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 About Me |
The United Endometriosis Council is a nonprofit organization which aims to inspire a world in recovery, while raising knowledge and awareness about a disease which affects more than 77 million women around the world and still has no cure.
Endometriosis affects more women than AIDs or Cancer and is the number one cause of infertility among women of child bearing age. The discovery and understanding of such an astonishing disease has taken thousands of years; still leaving medical professionals and suffers alike baffled to this day. Although first mention of the characteristic symptoms of the disease have been found in ancient Egyptian scrolls which date back to the year 1600 B.C., it took another 3,460 years before the first reference to Endometriosis would appear in the writings of Carl von Rokitansky, a German doctor, philosopher and politician, who would be credited for its discovery in 1860. Another 81 years would pass before American Doctor John Sampson would provide the medical community with a detailed accurate description of what he believed the disease to be and named it Endometriosis.
3,609 years since the first suffering women was documented and still today, the conditions leaves millions crippled to the floor in pain every month. It is a fight that is not unique to any one race, country or demographic, rather it has become a common denominator among patients, physicians, researchers, students and organizations across the world. In Brazil, the ABEND - Associação Brasileira de Endometriose is expanding its outreach to women in the work place who have been affected by Endometriosis. In Italy, the The Associazione Italiana Endometriosi, is expanding its outreach by launching the first phone support call line, reaching out to women in need, with a supporting network of understanding and knowledge. In New Zealand, Flossie.com has recently awarded $100,000 in grant money for awareness and outreach campaigns about the disease. In Norway, the Endometriose foreningen is reaching out to teenagers with education and support online. And all over the world scientist and researchers struggle to find a cure.
It is the belief of the United Endo Council that our collaborative knowledge will one day lead us to finding that cure. We are not physicians, biologists, or medical professionals. We do not seek or claim to give medical advice; rather we aim to build the world’s first United Knowledge base of Endometriosis. By bringing together organizations, medical facilities, writers, researchers, doctors and patients; we aim to build the largest knowledge base of information available on the disease. Our knowledge base will include articles, medical journals, web content, reference materials and links to the many organizations and support groups who fight with us.
Our journey to compile such a knowledge base is not one taken in haste. It has taken thousands of years for such content to be written, and will take a united effort for it to be compiled. Our knowledge base is elastic and ever expanding. It, like our determination is never ending as every day we hope there will be more to add, more to learn and more to share with the world.
When even the strongest women we know are drawn to their knees by Endometriosis…we stand UNITED!
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User is Offline.
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| User Joined: November 16, 2009 |
| Last Login: November 17, 2009
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 Active Rank: #0 |
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